Understanding Autism

How Is Autism Diagnosed?

Autism is diagnosed through a clinical assessment by qualified professionals. There is no blood test or brain scan for autism. This guide explains the diagnostic process for children and adults in the UK, including NHS pathways and private assessment options.

No single testThere is no blood test or brain scan that can diagnose autism: diagnosis is based on clinical assessment
MultidisciplinaryThe gold-standard autism assessment involves input from multiple professionals
Long waitsNHS autism assessment waits in many parts of England are several months to several years
Adults tooAutism can be and is diagnosed in adults: people of any age can seek an autism assessment

How Is Autism Diagnosed?

Autism is diagnosed through a clinical assessment evaluating a person’s development, behaviour and current functioning. There is no blood test, brain scan or genetic test that can diagnose autism in most cases. The assessment is based on gathering detailed information about developmental history, direct observation of behaviour and communication and information from parents, carers or teachers. The gold-standard assessment uses validated diagnostic tools and involves input from multiple professionals.

SEN Support for Autistic Children and Young People

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Key Points Explained

1

Who can diagnose autism?

In the UK, autism can be diagnosed by paediatric neurologists, consultant psychiatrists, clinical psychologists and multidisciplinary teams. A diagnosis cannot be made by a GP, though a GP can make a referral. For children, assessment is usually through community paediatric services or CAMHS. For adults, it is usually through specialist adult autism assessment services or adult mental health services.

2

The diagnostic tools used

Standardised diagnostic tools are used as part of the autism assessment. The most widely used are the ADOS-2 (Autism Diagnostic Observation Schedule), a structured observation tool administered by a clinician, and the ADI-R (Autism Diagnostic Interview Revised), a structured interview with parents or carers. Not all services use these tools for all assessments, but they represent the gold standard for autism diagnosis.

3

What the assessment covers

A comprehensive autism assessment covers developmental history from early childhood, current social communication and interaction, restricted and repetitive behaviours, sensory differences, cognitive and language functioning, mental health and adaptive behaviour. The assessment draws on multiple sources of information including direct observation, standardised assessments and information from educational settings.

4

NHS diagnostic pathways

For children, referral for autism assessment is typically made by the GP, health visitor, SENCO or paediatrician, going to community paediatric services or CAMHS. For adults, referral is typically made by the GP to specialist adult autism assessment services. NHS waiting times vary enormously across England, with some areas having waits of two to five years or more.

5

Private autism assessment

Private autism assessment is available from chartered clinical psychologists, consultant psychiatrists and specialist autism assessment services. Private assessment is typically faster than NHS assessment but can be expensive. A private diagnosis should be accepted by employers and local authorities in the same way as an NHS diagnosis. Quality varies and it is important to ensure the assessing clinician has appropriate qualifications and experience.

6

After the diagnosis

Following an autism diagnosis, the report should include a description of the individual’s strengths and support needs, practical recommendations and signposting to relevant support services. The National Autistic Society, local autism support organisations and online communities can all be valuable sources of support and information following a diagnosis.

For related information see our articles on Autism Quiz Online Screening Guide and Getting an Autism Assessment in the UK.

Frequently Asked Questions

How is autism diagnosed in the UK?

Autism is diagnosed through a clinical assessment by qualified professionals, typically including a psychologist and at least one other professional. The assessment covers developmental history, current behaviour, social communication, sensory differences and mental health. There is no blood test or brain scan for autism.

How long does an autism assessment take?

The assessment process varies between services. NHS waiting times are often long, with some areas having waits of several years. Private assessment can often be completed within a few weeks. The assessment itself typically involves multiple appointments over weeks or months.

Can a GP diagnose autism?

No. A GP cannot diagnose autism. The GP’s role is to assess whether a referral for a specialist autism assessment is appropriate and to make that referral. If you are concerned about autism in yourself or your child, see your GP and ask for a referral.

Understanding Autism Resource Hub

Visit our Understanding Autism hub for more guides on signs, diagnosis, causes, sensory needs, masking and co-occurring conditions.

The information in this article is provided for educational purposes only and is not intended as medical advice. If you have concerns about autism or any neurodevelopmental condition, speak to a qualified healthcare professional. SENDhelp Education Limited accepts no responsibility or liability for any loss or damage arising from reliance on this content. Any links to third-party websites are provided for convenience only and do not constitute endorsement of their content.

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